← Return to Diagnosed with High-Grade Urothelial Cell Carcinoma - ANYONE?

Discussion
Comment receiving replies
@rosemarya

@so1frustrated, I want you to know that I have been thinking about you and wondering how things are going. Have you been able to meet anyone thru your medical team who is able to share their experience with you?
Have you decided about whether you will go for the chemo?

Jump to this post


Replies to "@so1frustrated, I want you to know that I have been thinking about you and wondering how..."

Awww, thank you Rosemary! Have not found another with same situation, but went ahead with surgery only and had right kidney/urethra and bladder cuff removed on July 19. Came home this past Thursday July 22.. At same time as surgery I agreed to let them fill my bladder with Gemcitabine which is a chemo placed just in bladder for 1 hour to help reduce chances of recurrence there. When I met with new oncologist prior to surgery he said my decision of no pre-op chemo was fine, and agreed with what I'm doing. Am awaiting lymph node pathology and final pathology on renal pelvis. Will hopefully have follow-up with surgeon sometime this week where he will check bladder again post op to see how doing. Will be meeting with oncologist again Sept. 6. I have decided no chemo treatments no matter what they find but am researching ways to fight naturally; my hopes are that oncologist (I really like him) is up on some natural ways. So onward we go. How are you?