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Just found out I have mycobacterium abscessus!

MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)

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@hydrang3a

Hi Nancy…glad we have connected. I’ve met Dr. Huitt and know of her great reputation. You are in good hands. 3 out of the 4 antibiotics will be IVs..one is a brand new oral drug that only NJH can deliver. I will be on the drugs 3 mo the…the. 2 weeks in Denver for surgery than another 3 months IV and Oral….a six month ordeal which will probably be followed by many more months of oral antibiotics. Abscesses is scary…..I understand your fear probably better than anyone. I’d love to know about you. Why did you have your lung removed? What drugs were you and are you on? Let’s keep in touch during this long haul . Mary

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Replies to "Hi Nancy…glad we have connected. I’ve met Dr. Huitt and know of her great reputation. You..."

I had my lung removed because tests showed that it was only working 23% and Dr. Huitt advised removal as it was filled also with bacteria. I took Rifampin, ethambutol, and azithromycin for 4 years with no change so I went to NJH and had my lung removed and have been doing very well for the last 4 1/2 years with no bacteria. Just this month, the abscesses massilience has shown up. What kind of abscesses do you have? I will be going to see Dr. Huitt on August 16th.