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Just found out I have mycobacterium abscessus!

MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)

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Thank you for sharing your current situation. I am sorry to hear how bad you are feeling. I am also scared with this recent diagnosis of abscesses. After spending time with Dr. Huitt at NJH, I had my whole left lung removed because most of it was infected and not working well. I have been MAC free for 4 1/2 years doing just what you were doing with saline solution 2 times a day and being very vigilant. Dr. Huitt says this bacteria is in the water, the air, the soil, etc etc. Who is your doctor at NJH? Are you receiving all of the antibiotics intravenously? How long will you be getting the intravenous drugs? I am getting a line put in next week for Amikacin. I am not at all looking forward to it. I am also scheduled to be at NJH for 2 days in August and will see Dr. Huitt again. I hope that you will continue to let us know of your experience and progress. Take good care of yourself. Its wonderful to hear that you have such a caring husband who is helping you with all of this. Nancy

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Replies to "Thank you for sharing your current situation. I am sorry to hear how bad you are..."

Hi Nancy…glad we have connected. I’ve met Dr. Huitt and know of her great reputation. You are in good hands. 3 out of the 4 antibiotics will be IVs..one is a brand new oral drug that only NJH can deliver. I will be on the drugs 3 mo the…the. 2 weeks in Denver for surgery than another 3 months IV and Oral….a six month ordeal which will probably be followed by many more months of oral antibiotics. Abscesses is scary…..I understand your fear probably better than anyone. I’d love to know about you. Why did you have your lung removed? What drugs were you and are you on? Let’s keep in touch during this long haul . Mary