Our words are so true concerning getting docs who are fluent in Lewy and even care to learn more. I am still able to be somewhat of an advocate for myself. My wife is becoming more involved and has been going to all of my appointments with me for the last few years.
Yes - challenging t=your docs is sometimes necessary. Especially the specialists that aren’t familiar at all. They dont understand the meds that arent great for me to take. We push back on most of new meds.
I” have a list of meds that LBD patients should avoid and give it to all of my docs. Even then they still try to prescribe me something on the list or in that family.
Keep up “educating” the docs.
My Mayo neurology and psych teams are great. They understand pretty well - albeit the occasional mix up with a specialist outside of neurology.
As you mentioned - the portal is your friend. The responsiveness to my questions is great.

Peace
Larry H