← Return to COVID vaccines and neuropathy

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COVID vaccines and neuropathy

Neuropathy | Last Active: 6 days ago | Replies (2172)

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@tybeegeorgia

So many of my symptoms match with many of you. I am really hoping these things go away with time and I return to who I was. My current body is not familiar to me. I had an iron gut and knew my body well. I cycled and did pilates & yoga regularly.

I had shingrix in 2020 and moderna in March/April 2021. In 2020 I started getting cramps in toes during pilates and my legs were puffy for a while. I had belly issues and bloat and weight loss in late April & May 2021 (also change in stool color & consistency) -then the tingly/numb feet and left hand started in late May and persists. My toes cramp a lot and wiggle involuntarily. Belly is still not not normal. B12 was high. I also have aches in various places-mainly back-high, mid and lumbar. Lots of crepitus all over my body: back/neck/ wrists/ legs. I will say I have moments of feeling okay. Back xray and and ct scan did not show anything of concern to doctors. My leg muscles are always super hard and tight-like I have been working them a lot-but haven’t been. I did sit in a chair making videos and teaching for much of pandemic-so pinched nerve is current guess of doc and PT. MRI and spine doctor are in future. Gastroenterologist thought I was a hysterical female-this was based on a 10 minute telehealth session. He said "I am seeing a lot of this". I later asked what he meant by that and he got defensive. (Apologies for. venting!) My current PT has been most helpful. She is who first wondered if covid vaccine could be related. I am currently working on pelvic floor and ab strengthening. Lymphatic massage seems to help.

One last gripe: Anthem blue cross just sent a letter yesterday saying the network in which all but one of my doctors belong (dignity health) is no longer in their network meaning in the midst of trying to figure this out all my docs will now cost much more.

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Replies to "So many of my symptoms match with many of you. I am really hoping these things..."

Hmmm, I have not had neuropathy from the Covid vaccine, but I did have a hard-core whole-body inflammatoryA flare. I had a similar though milder reaction to Shingrix in 2019/2020, then a full-blown reaction to the flu vaccine in September 2020 that was finally calmed with steroids. And again with the Pfizer vaccine in Jan/Feb 2021...

So now I am wondering if this is my future with every vaccine, and when/how it first started. It seems each new vaccine sends my immune system into overdrive.

I find it very curious that your B-12 level was high - this happened to me in May, even though my supplement regimen has been the same for several years, and it was always OK before. Is that another side effect or a coincidence?

As with all things Covid, it seems "the more we learn, the less we know" - stay tuned for further developments.

Be sure your side effects were reported in VAERS. Are any of you symptoms improving?

Sue