← Return to Just found out I have mycobacterium abscessus!Discussion
Just found out I have mycobacterium abscessus!MAC & Bronchiectasis | Last Active: Apr 12 6:29pm | Replies (118)
Comment receiving replies
Replies to "I forgot to mention I have a hole or cavity in my lung which doctors say..."
Thank you for sharing your current situation. I am sorry to hear how bad you are feeling. I am also scared with this recent diagnosis of abscesses. After spending time with Dr. Huitt at NJH, I had my whole left lung removed because most of it was infected and not working well. I have been MAC free for 4 1/2 years doing just what you were doing with saline solution 2 times a day and being very vigilant. Dr. Huitt says this bacteria is in the water, the air, the soil, etc etc. Who is your doctor at NJH? Are you receiving all of the antibiotics intravenously? How long will you be getting the intravenous drugs? I am getting a line put in next week for Amikacin. I am not at all looking forward to it. I am also scheduled to be at NJH for 2 days in August and will see Dr. Huitt again. I hope that you will continue to let us know of your experience and progress. Take good care of yourself. Its wonderful to hear that you have such a caring husband who is helping you with all of this. Nancy