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Just found out I have mycobacterium abscessus!
MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)Comment receiving replies
I forgot to mention I have a hole or cavity in my lung which doctors say attracted the abscesses. Be extra vigilant all of you who have holes in your lungs. I used a percussion vest and nebulized 7% saline twice daily , ate well, was active, wore a mask and still got very sick. I am weak, quivering, and deeply emotional…..this disease killed one of my sisters and caused another to have a double lung transplant. Prayers welcome…I’m very scared and trying hard to appreciate the life I have, nurture hope and look towards the future with positivity to a time when I can embrace my first granddaughter.
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Thank you for sharing your current situation. I am sorry to hear how bad you are feeling. I am also scared with this recent diagnosis of abscesses. After spending time with Dr. Huitt at NJH, I had my whole left lung removed because most of it was infected and not working well. I have been MAC free for 4 1/2 years doing just what you were doing with saline solution 2 times a day and being very vigilant. Dr. Huitt says this bacteria is in the water, the air, the soil, etc etc. Who is your doctor at NJH? Are you receiving all of the antibiotics intravenously? How long will you be getting the intravenous drugs? I am getting a line put in next week for Amikacin. I am not at all looking forward to it. I am also scheduled to be at NJH for 2 days in August and will see Dr. Huitt again. I hope that you will continue to let us know of your experience and progress. Take good care of yourself. Its wonderful to hear that you have such a caring husband who is helping you with all of this. Nancy