Hi Chris, my name is Karen. It is a real pleasure to meet you and others who share in the invisible - yet very real and painful -struggle. Many people just turn their heads or stare blankly when you mention your condition, or they say, “oh, you’re too young” (a classic one I get a lot that I do not love hearing). Anyways, yes, I have had the skin biopsies done and been officially diagnosed. I’m actually seeing my Dr tomorrow morning to discuss it all further and talk about some other test results besides. It all started (the symptoms, at least) about 4 years ago, unfortunate timing that coincided with a nasty car accident. I’ve been thru the fingers and then some, 2019 being the worst - I had 4 surgeries in the short span of 6 months to try and correct “nerve damage”, one of which was to remove a septic blood clot in my elbow the size of a tennis ball (and no, I’m not exaggerating). I’ve been suffering for 4 years, but the last 2 have been brutal. It is interesting you mentioned being affected by the pressure, as I thought I might be crazy or solo in that area. It all started for me with right hand weakness, which has only progressed and remained unaddressed. I have zero strength in that hand (zero determined by testing) and no feeling in either of my hands. My left elbow (which has the clot/infection) still feels like day 2 post-surgery with the level of pain I have in that arm. The sensation of the drain is still present and I cannot touch that arm due to painful hypersensitivity (actual pain by touch + nervy sensations). It is very frustrating and sleep is hardly in my vocabulary anymore. I have to keep both arms inside compression or taped to stay at bearable level, even the wind makes my skin crawl. I have constant numbness, tingling, burning, stabbing, throbbing and NAUSEATING pains in both my arms. The intensity will fluctuate, but pain stays pretty high. I am nauseous 75%+, so I only eat/drink when I feel I have a window to do so. I am active, but not like I used to be as an athlete all my life. Waking up is not so joyful anymore, but I strive to look for positives and small victories in each day. I’ve been thru a lot more besides and I can talk about that later. I am only 30 years old, 31 in two months, and I don’t want to live the rest of my life barely functioning...I do take Gabapentin, which helps some, and am seeing an upper cervical chiropractor for the next 7 months. I am so so sorry that you are also suffering, but I am ever grateful that you have landed here to help so many others navigate this. Thank you! I wish many pain-free days ahead for you!