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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hi, I’m brand new to this group. Super grateful this little hidden universe actually exists!! I am looking for information on small fiber neuropathy, I have a lot of questions and input too. Thanks much
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Greetings @rivermaya34, Welcome to Connect. A little hidden universe......yes, maybe we are. We have now served more than 110,000 patients, caregivers, and patient families. We can do that and fulfill our mission of improving the quality of life of every member. And we can do that because Connect is about sharing. We learn from each other. So let's start with me. My name is Chris.......and I have SFPN Small Fiber Polyneuropathy. Depending on the time of day and the barometric pressure, I am a walking example of tingles, numbness, and pain.
Is that how you are affected by SFN? Have you been diagnosed? Have you had a skin punch biopsy? We need to know more about you, your body, and your attempts at reducing the impact of this condition. Then our moderators and mentors can find a Connect group of several members who would be able to identify with you and share their journey.
Personally, I am a user and supporter of medical cannabis for pain control. AND.....of appropriate exercises, yoga, meditation, and mindfulness to tolerate and even find joy in every day.
Where would you like to start?
May you be free of suffering and the causes of suffering.
Chris