@suerc I just found your post. I also want to let you know how to tag someone. To tag me, you would type @jenniferhunter in your post which would send me an e mail, so I would see it. I'm sorry I missed your earlier post. I know you have been through a lot.

If a surgeon was willing to help you, would you consider surgery? I know less invasive surgery sounds better, but also consider that the surgeon needs to be able to clearly see the area they are operating on, and sometimes minimally invasive surgery is not appropriate for the procedure that is needed. For a consult, you need a surgeon with advanced training and experience, and there are probably a lot of surgeons who don't want to operate on a case like yours for fear of failure. I'm not saying that to discourage you, but surgeons often cherry pick their cases so they will create higher success statistics for themselves.

If you do want to consider a consult at Mayo, first check that your health insurance is in network for Mayo.
If you would like get a second opinion from Mayo Clinic, you can find the contact information for the Minnesota, Arizona and Florida campuses here http://mayocl.in/1mtmR63.

When I originally contacted Mayo on their website, I received a call back form the neurosurgery department, and I requested that my records be sent in for review specifically to Dr. Jeremy Fogelson. The record review did not cost anything, and he accepted me as a patient. I also wrote him a letter that explained my symptoms and prior diagnosis from other surgeons, and also what they were missing. I had found medical research with a case like mine, and sent that in with my request. To make a request for review, you will need copies of all of your imaging and reports.
https://www.mayoclinic.org/biographies/fogelson-jeremy-l-m-d/bio-20055624
(There is also an appointment number listed on his profile if you prefer to call.)
https://sharing.mayoclinic.org/2019/01/09/using-the-art-of-medicine-to-overcome-fear-of-surgery/
https://sharing.mayoclinic.org/2017/07/26/spinal-surgery-saves-teen-swimmers-mobility/
Does this sound like a plan for you? Have I answered your questions?

@jenniferhunter if I could find a Dr at Mayo that could give me a good option with all I have going on I would consider it