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Struggling with making an osteoporosis treatment decision
Osteoporosis & Bone Health | Last Active: May 7 7:08am | Replies (657)Comment receiving replies
Hello Chris and thank you for responding. I did mean Eventity! Apologies for the confusion and for your wasted time in my error. Eventity has been around for only 2-3 years, requires 2 injections/month for 1 year. Heart problems come up as a possible side effect. I don’t know who manufactures it. I appreciate your sharing your experience with Prolia so far; have read some horror stories about it. As for activities to participate in, not sure what that means. What I have been seeking is some way to know the % of folks like you that have/had a good experience with (Eventity or) Prolia and the % who have sworn off after one injection. Or just info on the latter group would be helpful. Any ideas about where to find the numbers? Thx again for your response.
Replies to "Hello Chris and thank you for responding. I did mean Eventity! Apologies for the confusion and..."
In reply to @chocoholic…. I have done well with Prolia and have no experience with Evenity.
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Good morning......Yea...you got it. Except for the spelling which you might need for researching. Evenity. Regarding the research.....there are results mentioned on the website. The other person who should know about the details is your endocrinologist or another clinician. And finally......I have found the company, Amgen, to be helpful. They have medically trained folks who respond to your type of questions. If they don't have the answers at their fingertips they will go to the research department and get what is available and call you back. Here is the phone # for support at Amgen: 800 772-6436.
I talked to them a few times. Unfortunately, I don't recall the details well enough to pass them on to you. I do know that my endocrinologist told me that none of the side effects affected greater than 10% of the patients. I don't think she would speak untruthfully. I am always afraid I will be in the bottom 10%.
Let me know what you find out. Together we can figure this out. Don't forget you want double-blind tests with placebos.
May you have joy today.......you may have to jump for it.
Chris