← Return to Elevated parathyroid hormone (PTH): How is it treated?

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@anncgrl

First, my hat is off to you! How have you endured the symptoms for so long? Choosing a specialist fell into my lap. It turns out that the woman I was referred to, as a natural progression of referrals between doctors, had done many parathyroid surgeries.
At the time there was a very active clinic in Florida providing the surgery.
If I had not been so fortunate I would have fallen back on my old standbys...research and word of mouth.
I don't know where you live but I hope you are in the United States. I was in chat groups where many of the people suffering so much with parathyroidism were in other countries where the surgery was not available for quite some time and doctors were prescribing one medication after the other for treatment. I read enough to understand that the only cure is removal of the glands and that the reversal of symptoms occurs almost instantaneously following removal of the gland/glands. It seems particularly cruel to leave people in medical distress when the cure is so simple.
I wish you the best and hope that you will keep us informed here so that we can celebrate with you when you are free of all those nasty little symptoms.
P.S. I encourage you not to pay attention to anecdotal stories of any extreme regarding this condition. The only truth is that the symptoms disappear as if by magic. I was stunned. I could not even remember the symptoms within a very short time.

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Replies to "First, my hat is off to you! How have you endured the symptoms for so long?..."

That is very good to hear, @anncgrl. Yes, I am in the U.S. and within driving distance of the University of Michigan, Cleveland Clinic, and a plane ride to Mayo Clinic. So, I've got some good choices. I would probably be considered high risk because I have a paralyzed vocal cord which puts me at risk if the other vocal cord is harmed during the surgery, so I will seek out a very, very experienced surgeon who is willing to take it on.

Yes, I've endured the symptoms for a long time and persisted in seeking an answer. It appears like the answer is around the corner now.

I appreciate the encouragement you offered to me and others!