← Return to Idiopathic Small Fiber Neuropathy - chest pressure/tighteness

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@tedtheus

Just joined the group. I was diagnosed with small fiber neuropathy at Duke this past march after having the symptoms for 12 years. I've had sporadic chest pain along with leg numbness and pain for many years. My pain is in the area of my sternum which is often very tender to touch. I also have sporadic stomach discomfort with my neuropathy. I've had an equivocal diagnosis of pericarditis in the past but the 6 or so echocardiograms I've had over the years have essentially been normal. It's clear now that the chest pain is nerve related. Since March, I've taken 300 to 900 mg. of Gabapentin per day depending on the level of my symptoms. It definitely seems to take the edge off. Otherwise, ibuprofen seems to help somewhat as do the anti-inflammatory properties of raw ginger. I have good days and bad days and occasionally go a few weeks feeling fairly well and then the leg symptoms and chest pain return with a vengeance. I am a 56 yr old male and also have had CLL for 6 years. I'm otherwise healthy and try to exercise as much as possible.

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Replies to "Just joined the group. I was diagnosed with small fiber neuropathy at Duke this past march..."

Hello @tedtheus, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I have idiopathic small fiber peripheral neuropathy but only have some numbness in my feet and a little above my ankles. There is another discussion you may want to read through where members including myself have shared their neuropathy journey.

Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

I think we can all relate to having the good days and the bad days. It's helped me to just take them one day at a time and do the best that I can. Exercise really helps me too and I also try to do as much as I can. Have you tried to figure out if there may be something that triggers the bad days?