Hi Amanda. Yes, they are working as a team, but have no clue. I even saw a Dr. in Pawtucket, RI, that specializes in a diagnosis. One Dr. had told me it was CRPS, and this Dr. that specializes in it, told me no, and wanted to put me on a bunch of different meds. They all told me no, that’s no it. For the life of me, I can’t remember, but it’s in my huge medical box, which I’m not moving due to my sprained ankle, and bone bruise on the bottom and top of foot.
I take a prescription mouthwash, called Chlorhexidine Gluconate 0.12%, because I have sores all over in my mouth and lips, dentist and dermatologist don’t know why. I use Mupirocin Ointment, 2%, because I have on one side an 1 1/2 cut, and the other an inch cut, in my business area. I take Pantoprazole 40mg, am., because I have inflammation in my small intestines and have had to had my esophagus stretched, and will need done again. I take 600mg of Gabapentin am. 300mid afternoon, and 600mg at bedtime.nerve pain, they believeI’ve had I believe 4-5 EMG/NCS testing, and don’t have nerve damage. One of those tests are enough, right arm, scapula, shoulder, and some on right leg, where I have severe pain. I take Hydromorphone 4 mg every 4 hrs., but wasn’t taking as much until my ankle and foot injury. I tried not taking as much before. I’ve never raised my dosage or asked it to be changed from the first time. It would be at a 7, but usually an 8 pain level, good days the 7, and that was me not being able to do much. Right now my whole body is shaking from the pain, and I get pain waves, and vomit. I started taking Clonazepam 3 times a day, at .5mg per my Psychiatrist, counselors, and other Drs. I never had anxiety like I do know. I feel like I’ll never get into Mayo, to at least have the chance to be looked at. You feel unworthy, that they don’t care about you. I tried PT several times, Chiropractic, massage, acupuncture, ketamine infusions, and nothing has helped. They’ve put me on other meds., and I’ve had bad side effects, and had to go off of. I have constant migraines. I have aura migraines, botox did help tremendously, but scared to go back. No one knows what is causing my eyes to burn and go blurry. Just using eye drops over the counter. I scared to death to lose my sight. My father, 2 of his sisters, and his mother had macular degeneration, but that’s not what’s going on. They don’t know. I can barely keep my weight at 100lbs and I’m 5ft. 6 in. I know am skin and bones. I have night sweats, sore throat, the pain in my body parts, plus many days it feels like I’m having labor pains. I will have diarrhea some days 10-15 times. My gastroenterologist can’t figure it out. I have to go to bed with a towel or one of the pads, that the hospital uses, because I’ll have a bowel movement at night. One day my blood work is fine, and the next it isn’t. I end up in the hospital because, I’m vomiting 5 days in a row or more, and am so dehydrated. I can run a 95 temp. in the morning, and it can be as high as 103 something in the evening. Oh, yes! I’m taking ibuprofen for the swelling in my foot and ankle, per Ortho, until the swelling goes down. I do have to alternate between Aleve and Tylenol, for my temps. Right now just ibuprofen.Yes, I make sure I don’t take too much of it. I’m aware it can be bad. I have brain fig and fatigue, but only doze.I can get about 6-8 hrs., sometimes a week or less. Yes, I’m so hurt that Mayo has not accepted me. Wouldn’t you be. I want a life again. I hope to hod grandchildren and play with them some day.i want a life again. I want to drive a car, again. I want to feel good enough to go out with my family and friends. I feel like I always have the worst flu and pain on top of it. My friends are shocked, how I look. They are scared for me, and my one son is angry and scared I’m going to die. He can’t understand why I’m overlooked. Oh, I have toenail fungus on my right big toe. did laser, and Jublia on it.
General Internal medicine turned me down, because I didn’t have a diagnosis. I thought Mayo was good at that. I’ve known many friends that have gotten in, and no one can understand why I can’t.
Maybe you can help me with that. I don’t want to die. Please help.