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rgolia13 (@rgolia13)

Small fiber neuropathy

Neuropathy | Last Active: Jul 27 7:12pm | Replies (22)

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@johnbishop

Hello @lcassotta, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. A healthy lifestyle can certainly slow down and help some of the symptoms of neuropathy or at least not make it worse which not so healthy lifestyle can make it worse. There is another discussion where members have shared their neuropathy journey which I think you may find helpful.

Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

@artscaping has some experience with using THC but I'm not sure about micro-dosing. Here's a link to her story in the discussion above – https://connect.mayoclinic.org/comment/310344/

The Foundation for Peripheral Neuropathy has some information on Complementary + Integrative Therapies on their site: https://www.foundationforpn.org/living-well/integrative-therapies/

Do you mind sharing what you were searching for when you found Connect?

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Replies to "Hello @lcassotta, Welcome to Connect, an online community where patients and caregivers share their experiences, find..."

Good evening @icassotta, May I also welcome you to Connect. You are only 57 and have had idiopathic SFN for 3 years. What is your pain level compared to the worst pain you have ever experienced? What else have you been using?

I have been using medical cannabis for at least 5 years. I began with the strains and then moved to made-up dosages of CBD and THC. I have never micro-dosed THC. For one thing, there are no placebo groups or double-blind research efforts. I am satisfied with the options available for different times of day and levels of pain. I use everything from a 2:1 CBD/THC to a 1:3 CBD/THC. I also use both topical balms and tinctures.

My experience has taught me that just like other medications, our bodies become less than content with the initial dose and we have to increase the quantity of one or both of the ingredients. That is challenging enough for me to get it right. I rely on two companies that I have trusted since my introduction to medical cannabis.

I am here for you if you have additional questions or just want to run something by me. Where on your body is your pain the heaviest? Do you also have numbness and tingling?

May you be physically healthy.
May you be mentally healthy.

Chris