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@lizzier

It's one thing to give good advice, but sometimes it's a scary disease. I spent all day Friday in the ER with serious GCA symptoms, and came home exhausted. They did all of the blood work that is typical, and my doc called ahead to let them know I was coming, then he ordered additional testing, even an ultra sound of my eyes, as well as other blood work, and they found nothing. I was fine Friday evening but all day yesterday my eye felt very scratchy and sore. Today they seem fine. I'm 84, and like you I can deal with the PMR, but the other option would be challenging. I love crafting and hand stitching, and I just got back to it after 5 years of not being able to do my craft. I will accept whatever comes my way, but with an 85 year old hubby who was diagnosed 2 years ago with early Alzheimers, I am concerned. We're still doing well. We worked in our badly overrun flower gardens yesterday, and I designed and he planted a whole new bed in a space that was a disaster zone after 5 years of neglect. He's able to do the work, and loves it, and I can do the design, so we've been working on this new flower bed for about a week. We try to find satisfaction in whatever we can do together, and it isn't so bad. Losing my sight would not be a good thing, but perhaps I still have a few more lessons to learn. We'll take what comes.

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Replies to "It's one thing to give good advice, but sometimes it's a scary disease. I spent all..."

Sounds to me like you have a good doctor and one you can trust with good care. I don’t have that good doctor/trust and may have to search for new one but they are starting to have to deal with many people with long effects of COVID so may be hard to switch. I’m so glad you made it out of ER and back home again. I can’t imagine dealing with all this plus spouse w/Alzheimer’s but you still have a lot going for you. It’s all of a sudden becoming such a different world for me and one I have to adjust to. Take great care Lizzier.