← Return to Elevated parathyroid hormone (PTH): How is it treated?

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@anncgrl

I had parathyroidism. Possibly the weirdest medical experience to this point in my life. Unless something has changed there is only one cure. Remove the glands. One or both. They removed both of mine. Out patient surgery. Zero problems. All symptoms gone after, at the longest, 2 days. Unbelievable but true. All literature highly recommended having a surgeon has done this surgery many times. Tip: i always took a friend to all doctor appointments. One major symptom for me was impaired memory. My friend took notes and asked questions of the doctor. By far the most astounding aspect of the entire process was having all symptoms disappear immediately after surgery.

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Replies to "I had parathyroidism. Possibly the weirdest medical experience to this point in my life. Unless something..."

Hello @anncgrl,

You are so right about hyperparathyroidism being a "weird medical experience." I've had the same problem for many years now. While I've had elevated parathyroid hormone tests and elevated calcium scores and osteopenia, multiple nuclear scans and neck ultrasounds have shown no problem and some endocrinologists have been very dismissive of me. However, I've had the symptoms associated with this disorder so I changed my endocrinologist and she did neck ultrasounds every six months and it was finally found!

Originally on the neck ultrasounds, it was thought to be a thyroid cyst but most recently found to be a parathyroid adenoma. I'm thrilled to know this. Not because I really want surgery but because I now have a name for all of these weird symptoms that you mentioned.

Your post about your successful surgery and the help it has given you is very encouraging. How did you find an experienced surgeon?