← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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@valb68

I'm 70 years old, have had PMR for 3 years plus. It never goes away! I don't have "flares"; I am in constant pain, especially when I try to walk. Also have GCA, with its own set of symptoms. I also have fibromyalgia, which just complicates the pain (where and when). I'm diabetic, and have stage 4 kidney disease. That's enough ailments for now!😂 I have tried 2 biologics, including Actemra, Arava, and will soon be starting Rinvoq, another biologic. Have been on varying doses of Prednisone since the beginning, currently tapering at 8 mg. I just want to know if everyone has pain all the time, or just in flares . I do alright until I try to walk more than a short distance. I have spinal stenosis and my back starts hurting so much that I can't walk! Am going to try physical therapy. They have a therapy pool, so I'm looking forward to that. I sleep in the recliner because it hurts my head to lie down. I'm a mess, so I would appreciate anyone's suggestions. I live alone so that makes it harder to do things. Thanks for listening!

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Replies to "I'm 70 years old, have had PMR for 3 years plus. It never goes away! I..."

Hi valb, You sound upbeat despite all you've been going through. Prednisone at the proper dosage is supposed to alleviate most of the pain of PMR. You have a lot of other stuff going on too. Have you let your doctor know what you're experiencing? I found an infrared heating pad helped to alleviate some pain, and distractions, like talking to friends (hard during COVID times), but I would get a lift. Also I used to listen to a guided imagery exercise posted by Kaiser Permanente for fibromyalgia that was soothing and helpful Sometimes it put me to sleep. I hope that helps. All the best, tsc