← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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@lizzier

So sorry to hear about your onset of PMR at such a young age. Hopefully with proper care and a younger healthier body you can work through this quicker. Yes you are hearing from a lot of older people like myself who have many other diseases and illnesses, combined with PMR. It can sound discouraging, but hopefully with youth on your side you can regain your health quicker. Do all of the things that we learned. Do moderate exercises. It's pretty much in your shoulders and hips, so perhaps a skilled physical therapist can help you to find an easier more effective exercise program. Eat healthy, give up sugary foods if you indulge. Look up foods on the internet that are anti-inflammatory. Stay connected to friends, isolating isn't a good idea. Ask for help when you feel overwhelmed. Ask questions and make sure you get the answers that you need. If it doesn't feel right, ask again. Get as much rest as possible, but that doesn't mean that you can't keep in touch with people. Watch a good movie with a pal. Be your own best advocate. In today's world you really need to advocate for yourself. The 15 minute doctor's appt. can't cover everything. When you see your doc have your questions written done, and get them answered before you leave your appt. If you forget something call back and say I forgot to ask this question can you explain it for me. The nurse will convey your question to your doc, and you will learn as you go. Keep as involved in your world as you can, and if you need to step back for short times do so, just don't withdraw. the very best to you on this new journey.

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Replies to "So sorry to hear about your onset of PMR at such a young age. Hopefully with..."

Thank you for the encouraging words. I fully intend to manage this while continuing with my life. It’s nice to have conversations with Folks who have lived with this.

You again are giving excellent advice Lizzier. I go into second doctor appointment next week and have all my questions ready. My artery biopsies are showing negative for GCA which grateful for but still not 100% out of clear. I feel like I can deal with the PMR but not GCA. The prednisone has started making me feel like a human again and can get out of bed and exercise. I’ve been reading up a lot on diet for autoimmune and feel it’s top priority along with stressing less. Wish I could personally visit with all the folks on this site but this connect is very informative and helpful to us all.