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Are you taking Reclast for osteoporosis?

Osteoporosis & Bone Health | Last Active: Feb 14 5:27am | Replies (267)

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@joanme

@pink0509 @contentandwell @jmanj thank you! To be clear, I really wanted @jmanj to know it may not have been missing the Tylenol that resulted in symptoms. The physician who wrote that for patients suggested it would reduce the risk of symptoms, but not that you wouldn’t have them.

I was pretty miserable for a couple of hours, but I didn’t have flu like symptoms for 24-48 hours and you’re right, for that I’m grateful. I’m still a bit tired, but I’m ok with that.

Interestingly, the doc I spoke with in the afternoon who was covering said it sounded like a classic reaction to Reclast and I might want to consider that and might not want to take it next year, which stunned me. I said I was thinking of it much the same as a COVID vaccine - which was the greater risk, having temporary side effects of getting COVID. That it seemed to me a fracture was the greater risk. When I thought about it I was angry and felt she was suggesting I might not want to continue, which would increase my risk.

I did stop the Alendronate because the side effects were so bad (still not completely resolved). But this experience would not stop me from getting Reclast next year. I agree with you that the hydration and Tylenol may well have kept the bone and muscle pain at bay. So far I’ve had no pain 🤞🏼 and very much appreciate your support.

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Replies to "@pink0509 @contentandwell @jmanj thank you! To be clear, I really wanted @jmanj to know it may..."

I’m really surprised to hear that an MD would discourage you from continuing next year. While you certainly experienced some difficult few days, the worst of those issues prayerfully seemed to have now subsided. Yes, others may have experienced worse effects from the drug, but if you’ve done relatively well, why not encourage you…seems counterintuitive to what a reasonable should be doing?
I experienced flu-like symptoms following my Covid vaccine but, I still took the 2nd shot and can’t wait until a booster is recommended if it would mean warding off this horrid virus! I’d do the same w/ taking the 2nd round of Reclast if I were you.
I will find out on Monday if Reclast is definitively what’s recommended for me, likely so. If so, I will do my utmost to prep for the infusion and pray that any post-effects are as minimal as possible.
Of course I’m torn as to whether to take this drug, as have of all of us who have had to make this difficult decision, but to continue to have my scores decline as they’ve done year on year frightens me horribly as well. I’m going to work on holistic approaches over the next year in combination w/ the drug however unfortunately I’m at the point that I’ve waited too long to address this problem,
to rely on holistic alone to improve my scores fast enough before I have an incident.
Please continue to let us know how you’re doing…hopefully better each day! Toni

I’m with you on this. If those are the only symptoms / reactions I experience from Reclast it will not stop me from doing it again. Everything we do has pros and cons, pluses and minuses. It is up to each of us to figure out what the best approach is for our issues. Having input from others is certainly part of that the decision process, along with personal research. I don’t want to lose the progress I made by doing Forteo for two years, and Reclast is supposed to be what will help hold the line. Of course, along with continued exercise and healthy eating!