“we should not be ashamed by our seizures. I know it is easier to say than to experience it.”
I agree it is much easier to say than to actually put into practice. When I first came down with epilepsy the first part of that year a seizure now & then, no big deal but it continued to get worse. Once a week, every few days, every other day then daily. I was asked to leave school, I had trouble accepting the rejection, stigmas, the onlookers fear and hateful comments, talking behind your back. Walk up to the group who you thought were your friends and everyone is speechless. I wasn’t as brave and strong as I thought. I had a nervous breakdown. But I decided I had to accept my condition and live accordingly. There were many things I couldn’t do but I concentrated on doing what I could.
Sadly too many people refuse to accept or come to terms with their Epilepsy. Most people I talk to choose to hide their seizure disorder. If we can’t be honest and forthright about our condition should we expect others to be more understanding? I believe those who hide their condition do so out of shame and embarrassment and thereby perpetuate the Epilepsy stigma to continue. People will accomplish more good for our cause by being open. I’d much rather let everyone know so they knew what to do in case I have have a seizure and it’s an opportunity to dispell the myths.
Have a happy and hopefully seizure free day,