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@floridabonnie

I have been looking at this site and reading some of the stories, but I haven't seen some of the things I am interested in. I was diagnosed with PMR in April 2021. I am on prednisone, but I'm feeling really tired, have the munchies, and just not myself. I know prednisone relieves my pain, but are there other symptoms of PMR besides the pain? I haven't felt like myself in so long, it really bothers me. It feels like I aged 10 years in the 6 months it took to reach a diagnosis. Anyone else with this problem? Any suggestions?

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Replies to "I have been looking at this site and reading some of the stories, but I haven't..."

Hi @floridabonnie, Prednisone at a lower dosage relieves the symptoms of PMR. If it doesn't, you could have Giant Cell Arteritis, which requires a higher dosage of prednisone. The test for that is a biopsy of the temporal artery. Have you let your doctor know what is going on? Do you have any scalp tenderness, pains in the head, or trouble with your eyes? If you do, don't delay in letting your doctor know. Before prednisone, I had no appetite, extreme fatigue, horrible neck pain, scalp tenderness, and anemia. If your symptoms don't respond to Prednisone, it could be something else - an infection, malignancy or connective tissue disorder (this from a medical textbook). I hope that helps @floridabonnie Prednisone at a lower dosage relieves the symptoms of PMR. If it doesn't, you could have Giant Cell Arteritis, which requires a higher dosage of prednisone. The test for that is a biopsy of the temporal artery. Have you let your doctor know what is going on? Do you have any scalp tenderness, pains in the head, or trouble with your eyes? If you do, don't delay in letting your doctor know. Before prednisone, I had no appetite, extreme fatigue, horrible neck pain, scalp tenderness, and anemia. If your symptoms don't respond to Prednisone, it could be something else - an infection, malignancy or connective tissue disorder (this from a medical textbook). I hope that helps.

Hi floridabonnie,
I can relate currently I don't feel like myself. One minute I'm feeling ok and the next some part if my body is aching. Currently I'm trying to find a balance to maintain the pain at the same time I don't want to live on steroid medication. Watching what I eat, reduce stress and listen to my body that my staring point.