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Just Diagnosed with Small Fiber Neuropathy

Neuropathy | Last Active: Jul 4, 2023 | Replies (235)
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@jfouts1979

After 3 years of denials, I was able to try 2 rounds of infusions - IVIG did begin to help me - then insurance denied it stating I showed no improvement (without me having a doctor appointment and without talking to me) - I am pretty sure that is grounds for a bad faith claim - on the part of the insurance company not acting in good faith - but that is a separate issue - yes - the IVIG did begin to help. Interestingly, I also have No to very low IgM.

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Replies to "After 3 years of denials, I was able to try 2 rounds of infusions - IVIG..."
John, Volunteer Mentor | @johnbishop | Jul 14, 2021

Hello @jfouts1979, Welcome to Connect. You do have a right to appeal health insurance claim denials - https://www.healthcare.gov/appeal-insurance-company-decision/appeals/ It's good to hear the IVIG did provide some relief for you.

Are you able to share a little more about your diagnosis and your symptoms?

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0iggy11 | @0iggy11 | Jul 15, 2021

Insurance did something similar to me. After my 4th month of bimonthly IVIG they cut it off of coverage as well as all the payments made to the hospital where infusions took place. Left be with a 250k bill

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janstar61 | @janstar61 | Jul 15, 2021

Unfortunately this treatment (IVIG) would have to continued indefinitely. That is my understanding. I think I would consider trying it if it was a cure, but it doesn't seem to work that way.

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