Hi zaa, Hopefully you will feel much better on the Prednisone. It gave me energy and a lift, immediately. Some of that euphoria has worn off, but I still feel much better. I went undiagnosed for a year, with lots of pain and strange symptoms that I tried to diagnose and fix myself. I thought I had fibromyalgia and that was it. I was living in a dark hole. My world was getting smaller and smaller. I could manage some minimal house cleaning and cooking, but had no energy for anything else. The rest of the time I was on the couch, watching tv, under an infrared heating pad. And I lost 12 pounds! Anorexia is one of the PMR, GCA symptoms.
I found sometimes that just connecting with others and talking, difficult during the COVID shutdown, made me feel better for a while, eased the pain. My husband has memory issues so I have to be his guide as well. It was exhausting. You will get through this. I hope you have some friends for support. I often didn't let on how bad I felt because I know people get tired of hearing it after a while and I didn't want to be a whiner. My niece is half my age, she has a great job and career ahead of her, and she's just been diagnosed with a pretty serious autoimmune disorder - so, putting this in perspective, it hasn't been so bad. we can expect things to happen to our bodies as we get older, despite our best efforts to stay fit and healthy.
By the way, the Rheumatologist also told me to take low dose aspirin everyday as there's increased risk of aortic aneurism with GCA about 10 years down the road.
I was looking at the safe Pilates handout from National Osteoporosis Foundation and many of the Pilates exercises I loved to do are unsafe for osteoporosis. Another loss, but not one that can't be overcome!
Best wishes.