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Permanent SIBO due to removal of ileocecal valve

Digestive Health | Last Active: Apr 2 6:54am | Replies (191)

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@keetar

Hi Everyone I just recently had right hemicolectomy surgery and reomval of illeocecal valve in Nov 2020. It was emergency surgery for a twisted cecal volvulus so I did not ask alot of questions. Now unfortunately I have lots of questions. I just got my first SIBO diagnosis. If you have not been diagnosed with SIBO but have all the symptoms make sure you get the TrioSmart Breath Test. There are 3 kinds of SIBO and Hydrogen Sulfide does not show up on a standard SIBO test, only the Trio Smart Breath TEst. That is why mine was not showing up. It did finally show up on an endoscope. My new GI did that scope. Had to fire my old GI; his knowledge was very poor in ths area. Cant find alot about artificial cecal valve replacements / nipple surgery but think that is a new surgery that you should ask about before getting the cecal valve removed. I am feeling anxiety now that I think this will be a permanent condition. The IBS symptoms are bad but the fatigue is alot worse. Surgeon did not say 1 thing about complications when he came to see me every day in hospital after surgery. Had to do my own research online to try and figure this out. Sure many of you experienced the same thing. Just started the Xifaxan; hope it works. Have been on a low FODMAP diet for 2 months will no results. Elemental Diet supplement is decent and I use it as a meal replacement for at least one meal. Very expensive though so for me not a good long term solution. Hate that we are all in this situation but glad we can "Connect"

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Replies to "Hi Everyone I just recently had right hemicolectomy surgery and reomval of illeocecal valve in Nov..."

Hi KRF,
I had an emergency right hemicolectomy including removal of the ileocecal valve in 2015. I have been suffering with chronic diarrhea, bloating, gas, fatiue, brain fog, joint and bone pain, muscle tenderness and weakness. I didn't have a quality of life. I had no life due to symptoms. My provider has told me I have gluten sensitivity, I gave up gluten, and leaky gut syndrome, I gave up dairy, meat, simple sugars, etc. Finally, in December 2021 she ordered a CT which showed mild colitis. I had been begging her for a course of antibiotics. Finally, and I was on Cipro 500 twice daily and Metronidazole 500 three times daily for 8 days.
It was a miracle! My mind became sharp and bright, my diarrhea went away, my bone pain went away, muscle weakness went away, etc....until it came back 4 weeks later.
My provider finally referred me to a gastroenterologist who explained SIBO and SIFO after right hemicolectomy with removal of ileocecal valve.
Now on a different antibiotic and I have follow up with doctor in 1 month.
Fingers crossed.