← Return to Lewy Body Dementia at age 51: Anyone else with early onset LBD?

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@colleenyoung

Hi Jen, I'd like to add my welcome and to invite @larryh123 into this discussion. He, too, was diagnosed with LBD in his 50s and may be able to add perspective from his side.

If I might, I'd like to comment on your challenge number 2. I wish we could ban caregiver guilt forever. We will never feel like we're doing enough, but we are! We're doing the best we can given the situation of today or this hour. That's all we can do. You're an experienced education teacher. You might not be putting in the same amount of extra hours because there are only so many hours in the day, but I bet with your experience, you are able to give those kids exactly what they need when you are present.

I think a good mantra at any given time you feel pulled in many directions, you could assess the situation and ask "Right now, how can I do my best for my children, my husband, and for me?" Out of the 3, someone will need the lion's share of your focus, but don't forget that you can't give your all to all, all the time. And don't forget you as part of the equation. We're only human.

@IndianaScott, what do you say about Superman/woman and caregiving?

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Replies to "Hi Jen, I'd like to add my welcome and to invite @larryh123 into this discussion. He,..."

Hi @jen26 One of my favorite lines is that Superman and Wonder Woman only exist in the comics, not in caregiving!