← Return to Lewy Body Dementia at age 51: Anyone else with early onset LBD?

Discussion
Comment receiving replies
@becsbuddy

Oh, @barfly Such sad, difficult news. I would think your husband will be in the hospital as long as he is getting antibiotics. While he is there, you might want to ask a friend to “tour” possible rehab centers with you. The social workers or discharge planners on his unit can give you some names or suggestions. They can be extremely helpful. Just tell the nurse that you would like to meet with one. When i was a nurse in the hospital, we met with the discharge planners every day to develop a workable plan. Having your input makes the whole process go smoother. This can all seem like too much and be overwhelming. And it is. But, remember, you want to maintain some control and do what’s best for your husband.
These 2 sites may give you some hints and ideas on what to look for:
https://www.nia.nih.gov/health/how-choose-nursing-home

https://www.aarp.org/caregiving/basics/info-2019/finding-a-nursing-home.html

May i ask your husbands age? How long has he had Lewy Body Dementia? Becky

Jump to this post


Replies to "Oh, @barfly Such sad, difficult news. I would think your husband will be in the hospital..."

My husband is 76. He is getting sedation drugs not antibiotics. Last night his Hemotocrit and Hemoglobin dropped again. They added a second transfusion. Sedaded with Fentanyl and Propofol going on 4 days.
He has had LBD symptoms for about 4 years. Diagnosed at the Mayo Clinic in Rochester one year ago. He is being treated at the UAMS (Arkansas) Movement Disorder Clinic in Little Rock.