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DiscussionJust found out I have mycobacterium abscessus!
MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)Comment receiving replies
Replies to "After fighting MAC for 4 years with antibiotics and no change in my situation at Stanford,..."
Hi Nancy and others reading this….I have had a similar experience . Treated for MAC three years ago at NJH IVs and 18 months on big 3….negative for over a year…now very sick….broncoscopy and grown cultures positive for Abscesses…my doctor at NJH is putting me on a daily IV regime of four active drugs 3 months before surgery and 3 months after Devastating news….my husband will administer my daily IVs thank God he is a wonderful caretaker a d as familiar and disruptive to my body interventions antibiotics are and as uncomfortable/painful 6 months of wearing a pic line is I welcome anything doctors can do to treat this awful disease. I feel horrible.
Hi Nancy. Yes! Please do check back and let us know what you learn. Good luck with everything. -Terri