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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 days ago | Replies (6021)

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@johnbishop

Hi Lorena @rnlorena, Welcome to Connect. To have the neuropathy develop overnight seems really strange and rare. I have idiopathic small fiber peripheral neuropathy and it started gradually more than 20 years ago. I can relate to being stressed out and having a lot of questions you are trying to get answered.

One of the best sites for neuropathy information is Neuropathy Commons - https://neuropathycommons.org/. Also, for diagnosing the different types of neuropathy, Dr. Matthew B. Jensen has some really good and easy to understand videos on his YouTube channel - https://www.youtube.com/c/matthewbjensen

You mentioned having pain in your eyes. Is it like a migraine headache or is it the actual eye that is painful?

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Replies to "Hi Lorena @rnlorena, Welcome to Connect. To have the neuropathy develop overnight seems really strange and..."

Not a migraine but like shooting pains in my eyes. Also I was driving one day and I felt like something spattered in my eye. (nothing did) Sometimes it feels like fluid shooting through my eyes sometimes stinging and burning. It all happened at the same time. I wonder if I need to keep pursuing this. Maybe it could be something else that caused it. It is scary. I have read a lot of other peoples stories. When I went to my last visit I thought I was prepared because I had written down questions but I suddenly have more. I know that my nerves have just about burnt out. So I am not sure what is next.