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DiscussionJust found out I have mycobacterium abscessus!
MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)Comment receiving replies
Replies to "Please let me know how your visit turns out. I have untreated MAC and my Dr.s..."
After fighting MAC for 4 years with antibiotics and no change in my situation at Stanford, I decided to take myself to National Jewish Health and ask to be seen by Dr. Huitt, on the recommendation of a few infectious disease doctors. I called them, they interviewed me extensively, and then set up a 10 day visit at NJH in Denver. My time there was well spent as they gave my an extensive battery of tests and sent me to classes. I have been MAC free for 4 1/2 years now; however, this abscessus has just shown up in my sputum sample, which has been quite discouraging for me. Since Gwen Huitt only focuses on MAC, I found her to be much more knowledgeable than my 2 pulmonologists that treat a variety of diseases, of which MAC is one. I will let you know how visit goes with her. Nancy
Hi Jan,
I thought I would answer your question sent by the Contact a Moderator form here in this discussion.
Here is a list of pulmonary specialists practising at Mayo Clinic at all 3 locations:
https://www.mayoclinic.org/departments-centers/pulmonary-medicine/sections/doctors/drc-20397851
You can filter by location
- Rochester, MN
- Jacksonville, FL
- Phoenix/Scottsdale, AZ