Hello, Ginger and all. @gingerw, @m1miller, @njh , @barbq, @devonsnana, @colleenyoung
I'm a couple years on various connect groups but new to the kidney group. I'm 74, live in Florida, have a bunch of junk for many years like most of us here, and just got new testing re super high protein and infections in urine a couple of weeks ago w/UTI, landing me in the Mayo Hospital on a fun Sat. afternoon. I'm seeing a nephrologist and infectious disease specialist now, last week, first visits with each.
Nephrology sent me for lots of tests last week, and I'm doing a 24 hour urine Monday. So far, tests indicate ANCA Vasculitis, a new one for me. I have sarcoid since I was 40, been in and out of remission with a love/hate relationship with prednisone. They seem to like me, these autoimmune diseases. I'm on prednisone now for sinus/headaches/face/neck pain, PCP thinking it might be related to migraine or ???so he put me on the perfect med for vasculitis. God is good.
Also, the infectious disease doc yesterday put me on a long-tern dose of 500mg Keflex to manage the multiple and serious UTI;s this last year. One with sepsis, this last one with 600+ protein and high infections, blood count. That med may change now with this results, see what nephrology says. I hope to see her this week.
Prednisone has given me a bit of energy, but wow am I drained. I spent 3 days in hospital last week, from Sunday, I thought from exhaustion and stress from my own issues and my son was in a medical crisis and admitted to Mayo Hospital through ED on Sat., but probably was actually Vasculitis, symptoms fit but urine was ok.
Amazing things, these bodies of ours. I'm constantly impressed with what our Lord did when he put us together. Amazed and stumped. I often wonder why I am, as you said, one of the chosen. I've had many conversations with Him about all this stuff in life. What a mess! I know I'm strong. Don't want to be. I know the Bible teaches we won't have more than we can handle, we're learning.....I don't want to learn any more; Smart and strong enough, thank you....
Well, that's my story, a bit of it anyway. I've appreciated so much of what you folks have said and shared. You're much further down this path of course than I, and dealing with everything with such good spirits. I admire you all. I don't know what the doctors will tell me of course, or what they plan. But, I'm so very thankful, so blessed to be installed and working with the marvelous Mayo system. God is taking care of me. I thank Him for getting me to these docs and to this site. What a blessing Connect has been to me these last couple of years.
I hope you all have a good rest this evening, filled with peace and healing. Good for CBD gummies!
Blessings, elizabeth
Good Luck