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Just found out I have mycobacterium abscessus!
MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)Comment receiving replies
I too have just recently been diagnosed with abscesses after being MAC free for last 4 1/2 years. Like you, I was disappointed and anxious as I learned that this is a more agressive bacteria and more difficult to get rid of than MAC. My doctor at NJH, Dr. Huitt, said that right now she wouldn’t treat it as there are only a few colonies; however my pulmonologist at Stanford said I should be treated right away with Amikacin via IV 3 x a week, and take Azithromycin. I am currently seeing up a trip to NJH to see Dr. Huitt in person to discuss further. I will keep you posted. Thank you fir posting this. It is comforting to talk with others about this new and emerging bacteria.
Replies to "I too have just recently been diagnosed with abscesses after being MAC free for last 4..."
Please let me know how your visit turns out. I have untreated MAC and my Dr.s are not recommending treatment. I would love to know how you met Dr Huitt and would you recommend him to others. Thank you, and bless you as you go forward.
In reply to @thielman…. I have had bronchiectasis since 2017 (diagnosed) but have never had MAC/NTM’s…I feel for you so much! Take care and keep us posted.
Nancy, are you doing any nebulized saline now to at least try to thwart the infection for now? You may want to question the taking of azithromycin just yet as many mac experienced doctors prefer to use that drug as a last resort. It is considered a 'big gun' so to speak, and the fear is that your abscessus could become resistant to it and then you won't have many options. Mayo drs like to try other antibiotics first.
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@thielmann1 Who is your Pulmo @ Stanford? I see Dr. Sung.