Hi I'm sorry to hear of your struggles. I'll let a mentor tell you that we are not doctors here, we are a group of patients who utilize this to Connect with one another. My one basic piece of advice is to stop going to the ER and the make an appointment with a neurologist most likely, the ER should have given you a referral to a clinic or physician for followup. Going to the ER keeps you alive, but often it doesn't provide an accurate diagnosis.