@0iggy11 you said that you are going to the Mayo Clinic in August so i thought you might find this discussion helpful.
https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/
You want to be as organized as possible so you can present a clear case. It would be terrible if you forgot an important detail! You could even start keeping a health journal. Write down what happens and when.make a list of all the doctors you’ve seen, etc.
Will someone go with you to the appointment?