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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Autoimmune Diseases | Last Active: Oct 13 3:46pm | Replies (312)Comment receiving replies
I personally have not found any of the doctors at Mayo in Scottsdale to be that good. I would say the brightest neurologist in the Scottsdale area, and literally all of AZ, is Dr. Seth Kaufman. He was trained at Mass General and will definitely try to get to the bottom of any issues dealing with neuropathy. He is one of the most thorough neurologists I have ever seen. The only issue I have with him is is bedside manner.
Replies to "I personally have not found any of the doctors at Mayo in Scottsdale to be that..."
Glad you like him. My experience with him was horrible. Rude, to the point of almost being abusive, literally called me an addict because I am on lyrica and a buprenorphine patch for my fibro and small fiber neuropathy pain. He told me instead I should be getting into a clinical trial to get IVIG. What planet is this guy on?? My insurance would never cover it plus there are no concrete studies showing that IVIG helps the pain of SFN. My neurologist in CO said he would never put me thru getting IVIG for that because it really is a lifestyle change you have to accept, would probably have to get a port, have possible severe side effects, but the most importantly is, my insurance would never cover it. I found him frankly to be an abusive idiot.
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