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Benign fasciculation syndrome (BFS)
Brain & Nervous System | Last Active: Nov 14 4:35am | Replies (415)Comment receiving replies
This is incredibly helpful information. Thank you so much for taking the time to provide these resources, @johnbishop. I googled something like "cramp fasciculation syndrome treatment" and got here from a similar thread. Thanks!
Replies to "This is incredibly helpful information. Thank you so much for taking the time to provide these..."
I usually look everything up on the mayo clinics site. They have pretty good information on everything. Ican say they have everything covered I've ever looked for. I also started looking on the NIH site (national institute of health)
A follow up to this since I last posted. I have had one injection of Botox that helped tremendously, eliminating fasciculations almost entirely for the span of 3 months. It's tough to get health insurance to cover it (BCBS prefers "whitebagging," i.e. covering the procedure only if you use their pharmacy, which almost no providers will agree to due to safety concerns.)
That said, it worked, and worked very well. I do not tolerate gaba, pregaba, carbamazepine or any of the other drugs well, so this was a huge relief.
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@marvel61018 - Do you have any questions prepared for your Mayo neurologist appointment that you would like to ask and get answers? There is a site with some great information on planning your visit and even has some tips and cards you can print to take with you - https://patientrevolution.org/visit-tools
I wonder if @greeneyedenergy, @londonwc1, @richman54660, and @wendycad might also have some suggestions for questions to ask to help prepare for your upcoming appointment.