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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
@mac47, i hope all is well. When i was looking for a doctor. His name came up and he has a great education and comes recommended by several websites. I probably whould have gone there but it is too far from me. Is he local for you? Im happy for you, let us know how the appointment goes. Did they set you up with testingso far? Best of luck,
Becky
Replies to "@mac47, i hope all is well. When i was looking for a doctor. His name came..."
@mac47, my opinion .. do NOT stay with someone who says they have little experience with MAC .. this is a serious disease .. educate yourself and be your own best advocate! Get moving on it! Don't wait for Aksamit .. he is now a world wide expert/speaker .. but the Mayo doctors work as a team so just get an appt .. he is ALWAYS available for a consult. Hugs to all! Katherine
Please keep us posted.
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Dr Cook was my plan B if I couldn't get in to see Dr Aksamit @ Mayo. Haven't been able to wrangle an appointment with Aksamit, so will keep my August appointment with Cook. He's very close to my home so plan B is fine with me.
I was diagnosed in January of this year and put on the big 3 antibiotics but my ID doc admits she has little experience with this condition and recommended Cook or Dr Gwen Hewit in Denver as experts. I appreciate her honesty and look forward to getting my questions answered.