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No wonder there is so little being done about Neuropathy!
Neuropathy | Last Active: Jul 14, 2021 | Replies (78)Comment receiving replies
Hello @polywog, Welcome to Connect. I see you have recently joined Connect and have posted in several neuropathy discussions. Thank you for joining these discussions. It is really helpful when other members with neuropathy share their story and what helps them. You may also be interested in a few other discussions and find them helpful:
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
-- Living with Neuropathy - Welcome to the group: https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
Do you mind sharing what you were searching for when you found Connect?
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Sure. In one of my posts I talked about the soft plush fleece that I made into sheets and pillowcases. It felt so wonderful and I was so excited I was telling my sisters I should go on a forum and tell everybody with small fiber neuropathy about this. I know how extraordinarily difficult it can be to find comfort when you burn. I mean the slightest air movement can be painful. And in my case I burn head to toe 24/7. Like a really really bad sunburn you don’t want to touch. So any little thing that helps, I just wanted to share, hoping it may help someone.