Hi. I am so very sorry to hear of your experience with the vaccine. I’ve decided not to get it. I’m pretty healthy and sure I can handle Covid. But, the reason I wanted to respond to you, is that you say you burn all over. I have idiopathic small fiber neuropathy from head to toe. For about 10 years. Because I can’t hardly stand anything touching my skin, and I can’t even stand air movement, I always wear plush fleece pajamas or lounge wear. I also had these thick plush fleece throw blankets lying around. Then one day a couple of months ago I thought, I want Some sheets and pillowcases made out of this. So I got a twin size blanket to go under me, and a twin size blanket to go over me, and a third twin size blanket and a friend of mine sewed pillowcases for me. It made such a difference in my comfort during the night. I’m just so happy about it I wanted to share it. I even have plush fleece washcloths! I seriously don’t like anything touching my skin.

This is my first comment on this site. So I’ll share just a couple quick things: I take gabapentin 600 mg 3X, Nucynta 50 mg 4x, and Nucynta ER 100 mg 2X. And if it gets really bad, I add a Benadryl. Surprising how well Benadryl helps me. I’ve been very stable for several years. I’ve never escalated with my medication and I feel well managed.

I also have the autonomic problems related to small fiber neuropathy. High heart rate, low blood pressure, thermal dysregulation etc. but I’m OK pretty much. There is a Small fiber neuropathy researcher at Harvard medical/Mass General named Anne Louise Oaklander And she has some Informative lectures on YouTube. FYI.

You take good care now. Godspeed.