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I just saw a new doctor today waited a month to see but what I was told did not give me the answers I was looking for or that could fix my problem the answers I was given were that he could do the same thing but no one seams to know or care that what has been done to me and the pain I am in I am lucky if I get two hours of sleep I go to bed with my legs feeling like I am rapped up in a Electric Fence then it feels like someone is drilling into my legs and this goes on all the time if I-am awake then there’s my lower back it feels like I am being bent in haft and this all started because I told them that there was a problem with my pump but I was in less pain before they did all this .I know that if it was them dealing with I am then things would be different but now there’s no urgency they say in August that they will start when it’s time for a refill but I have been dealing with this for over 40 days already I know what it could do and did for 21 years but now I’m done waiting so if I am going to be in pain then I won’t have to deal with the other things that come with the pump so I am contacting the surgeon to have this thing removed if I am going to be in pain for the little time I have left then I choose to not have the problems that go with having a pain pump so I have sent a message to the surgeon for an appointment to remove the pump and I will deal with the pain on my own
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Hydrocodone provides me temporary relief.
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@bear338 Bear, I really don't have much to add except that i am going through something of the same. I have several genetic diseases (Gelsolin with Walker-Warburg, Clarkson's exploding capillaries, diabetes II, Cardiomyopathy (dilated and otherwise), cancers all over my body (skin, pancreas, prostate, leukemia, lung, esophageal, spleen, etc.) , Leukemia, anemia, encephalopathy, fragile teeth, blepharomailisis in my face, ptosis, .....). Anyway hang in there, buddy. I have been on several different pain meds, and Tylenol pm or Equate pm is best for me for sleeping. I have tried some cheaper brands, but they only work well for about 4 hours. They are just acetaminophen with a weak sleeping pill added. And the Marijuana pill I tried was not helpful. However, it was expensive. In our car, in the driveway, I could not find the brake pedal, so that cost us about $1,000. Gold Bond Psoriasis Creme with aspirin works well on the face for several hours. I alternate that with Noxema, day and night. Again, hang in there. Getting old and sick is not for weaklings. old karl