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Benign or Malignant IPMN? What to do next?
Pancreatic Cancer | Last Active: Apr 8, 2023 | Replies (79)Comment receiving replies
I am back 🙂 and I hope you are all WELL !
I had my 6 months results today and it is all over the place. Overall good news that there are NO changes
The surgeon recommended to continue with the same schedule of 6 months MRCPs and if there are any changes to have a whipple. That is when things got a bit off-piste I wanted to know more data that he couldnt provide such as
1. What kind of cyst is it ?
Not sure apart that it is benign and it is not a simple cyst. It is either IPMN or a tumor. Very very small chance of SCN.
2. Can we miss cancer if we wait?
As per any doc he will never say 100% and I do appreciate that. He said yes we can miss cancer but the changes normally are very visible.
3. Why was my CEA so low?
No comment
4. What kind of surgery ?
He suggested Whipple , I then challenge him with distal and he finally said Central. That really annoyed me as I wanted him to drive the decision not me .
With a lot of back and forth and maybe me been a bit rude , we agreed to do another EUS/FNA in sept as the cytology was missed last time.
Thats my 5 cents update. Here if I can help any other IPMN patients
Mario
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I really appreciate the update @mariouk. It is good when things remain basically "unchanged." I can understand your frustration in not being able to get answers to your questions. It is difficult to be dealing with a potentially serious problem and not get clear-cut answers. Truth be told, sometimes there aren't clear-cut answers.
I'm not understanding one part of your post. You said that the doctor talked of a Whipple and you suggested "distal" and he said "Central." What does Central refer to?