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New FDA-Approved Treatment for Alzheimer's Disease - What Mayo Clinic Experts Say Jul 6, 2021 | By Dr. Anne Shandera-Ochsner, HABIT Midwest Director (@dranneshanderaochsner)
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@lizzier

That's all well and good, but if it isn't accessible then it's of no use. Nice that it worked for you, but timing, distance, sickness and other things doesn't make it accessible to me, so I had to improvise, and I did. I was a Social Worker for Adult Protective Worker before I retired, so the dynamics have not escaped me, and we've had a wonderful 48 year marriage, with great communication, and we are extremely fortunate, but when it hit us, it became irrelevant. I am working with the local Alzheimer Assoc. and our Area Agency on Aging. Even with the knowledge and experience I have and knowing people who work in those organizations takes on a different meaning when it's personal. I wonder how people cope who are completely unprepared without knowledge and experience. We're doing well considering, but it is not a simple process.

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Replies to "That's all well and good, but if it isn't accessible then it's of no use. Nice..."
Sue, Volunteer Mentor | @sueinmn | Jul 6, 2021

Lizzie - I know you feel like you are in a crazy world, but you, and the other caregivers across the world, who do this every day with limited resources and support, are my heroes. When you said "I wonder how people cope who are completely unprepared without knowledge and experience." The answer is they do the best they can. It just happens that with your determination & experience, your best is a little better, and can help others here on Connect!

Your question made me think of my hours, on phone and in person, coaching friends who live in remote or rural areas, with no experience and no help, of my neighbor caring alone for her husband, with no access to the computer. Or of trying to help people on Connect find resources while living in the midst of the storm. Or of my friends, burying their Dad today after a 7 year journey, hoping they do not feel like they failed by placing him in care this past year.

This is truly one of the most difficult journeys in life, please lean on us while you make it. And please think ahead about your next stops...nothing is worse than ending in the ER in a crisis, and having decisions made by strangers for the 2 of you.

May you have an easy day today. Please feel free to lean on us.
Sue

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