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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 days ago | Replies (6021)
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@carlyschneider

Thank you @johnbishop for this information! I have not heard of this treatment. I am concerned about the side effects of IVIG and I am just beginning to look into some treatments to manage this. I just saw this morning that there is a group here specifically for TS-HDS SFN!! Is this what you were dx with? I have so many questions for the group!

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Replies to "Thank you @johnbishop for this information! I have not heard of this treatment. I am concerned..."
John, Volunteer Mentor | @johnbishop | Jul 6, 2021

@carlyschneider - my diagnosis is idiopathic small fiber PN (possibly genetic) but I don't have the TS-HDS antibodies. Here's the discussion you mentioned:

TS-HDS Antibody and Small Fiber Neuropathy: https://connect.mayoclinic.org/discussion/ts-hds-antibody-and-small-fiber-neuropathy/

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