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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 days ago | Replies (6021)

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@pixiejacq

Oh! So different than my symptoms. I've only had an EMG and was diagnosed with Peripheral Neuropathy. Sharp, achy, pins and needles, but no numbness until this last year. It's now migrated into my ankles, up my calves and into my knees. I also have swelling of feet and ankles.
I do have to preface this by saying, I had a toe surgery in 2000 that progressed to CRPS (best to look it up - it's kind of complicated to explain) in both feet. I then developed Lipodermatosclerosis (LDS) about 5 years later. Lipodermatosclerosis is often seen in vascular insufficiency, but all tests were negative for vascular disease, so it was attributed to the CRPS. The doctors I've been to over the years have never seen CRPS, Peripheral Neuropathy and LDS all together. They all produce severe pain in some form or another with no cure, so the only real goal is to reduce the pain - which brought me to this sight.
I also just was told my Vitamin D level is 2!!! The doctor said that this can cause pain, numbness, tingling and weakness. I was started on 50,000 iu of Vitamin D3 once a week which immediately made my symptoms increase 10 fold!!! Which I guess is common. So.... my goal right now is to help my pain as much as possible. Thank you for your response!

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Replies to "Oh! So different than my symptoms. I've only had an EMG and was diagnosed with Peripheral..."

Oh wow! You’ve been through the ringer! If I’m reading this correct, did your pain symptoms increase after taking vitamin D??? Hoping you can find the best solutions for you to manage your pain.