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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 days ago | Replies (6021)
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@carlyschneider

Hi @johnbishop
I was diagnosed with immune small fiber neuropathy and IVIG is the recommended treatment. I haven’t started it yet. Still processing the dx and what is means for me. It’s been a rough year to say the least.

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Replies to "Hi @johnbishop I was diagnosed with immune small fiber neuropathy and IVIG is the recommended treatment...."
John, Volunteer Mentor | @johnbishop | Jul 6, 2021

Hi @carlyschneider, I can understand the still processing the diagnosis. It is a lot to take in and it's easy to get buried by anxiety. It's good that you are researching and advocating for yourself. Have you considered any alternative treatments or therapy to see if they might offer some relief from your symptoms?

Have you heard of Myofascial Release Therapy (MFR)? There is a discussion started by @jenniferhunter where you can learn more about it - https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/. @artscaping has found considerable relief from her MFR sessions and may be able to share more information with you.

The Foundation for Peripheral Neuropathy also has some complementary and integrative therapies for neuropathy on their website -- https://www.foundationforpn.org/living-well/integrative-therapies/

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