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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 days ago | Replies (6021)

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@dipperlip1

I have neuropathy not caused by diabetes. Not sure how long I have it because I also suffer from Erythromelalgia which causes burning and redness in my feet and hands, sometimes ears. When the weather gets hot and humid it gets a lot worse, sometimes there is no particular reason. We went to Mayo in Rochester in 2006. They know what it is but no cure. Does anyone suffer from both of these conditions? For several years I contributed my burning legs and knees to that but once it effected my hands, forearms and sometimes upper arms I went to a Neurologist who confirmed that I also have neuropathy.

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Replies to "I have neuropathy not caused by diabetes. Not sure how long I have it because I..."

Hello @dipperlip1, Welcome to Connect. There are a few other discussions you may want to read and learn what others have shared on symptoms similar to yours. @hotfooted @revisl @jlander @drolker and others may have some suggestions or information to share with you.

-- Erythromelalgia: https://connect.mayoclinic.org/discussion/erythromelalgia/
-- Erythromelalgia and Myeloproliferative disorders: https://connect.mayoclinic.org/discussion/erythromelalgia-and-myeloproliferative-disorders/
-- How serious is SFN.. My feet hurt so bad when I stand or walk..: https://connect.mayoclinic.org/discussion/how-serious-is-sfn-my-feet-hurt-so-bad-when-i-stand-or-walk/

Erythromelalgia Clinic in Minnesota: https://www.mayoclinic.org/departments-centers/erythromelalgia-clinic-in-minnesota/overview/ovc-20421220

Were you seen at the Erythromelalgia Clinic in Minnesota?