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Tapering off of Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)

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@johnbishop

Hello @dawn0723, Welcome to Connect. You will notice that we have merged your discussion into an existing discussion - Tapering off of Prednisone so that you can meet other members with PMR like @lizzier, @kmeikle1, @maddman and others who have experience with tapering off of prednisone.

I've had 2 occurrences of PMR and started both at 20 mg dosage. The first one took me 3 and half years to taper off and the second time took me 1 and half years. I learned to keep a daily pain/aches log along with the amount of prednisone I was taking so that I could refer back when needed. Originally I started tapering down every week but later changed to every two weeks at small doses. The first time when it took 3+ years to taper off, I went back and forth between 1 mg and 1/2 mg the last 6 months until I was finally able to taper off with only minor aches when I got up in the morning. The second time around with PMR I made some lifestyle changes which I think made it easier to taper off. I exercised more and ate a little healthier focusing on low inflammatory foods.

This might help some - What to eat if you have polymyalgia rheumatica: https://www.medicalnewstoday.com/articles/321683

Have you discussed any tapering schedules or tips with your rheumatologist?

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Replies to "Hello @dawn0723, Welcome to Connect. You will notice that we have merged your discussion into an..."

Hi John. Yes, she is monitoring my taper and that is why she took me back
up to 10 for the two weeks and then down by 1 each month after that. I am
starting to feel the aches and pains in the morning again, although minor
at the moment, so I guess that we will have to see what happens. Thanks so
much for reaching out. It really helps.