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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)
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@jpalexander

My rheumatologist said to taper as low as possible and still function. I now take 4mgs prednisone daily and feel pretty lousy most of the time but am able to do what needs to be done around the house and garden a little at a time. I have had PMR for two years plus and don't have a lot of faith that it will miraculously disappear but that would be nice.The side effects of prednisone scare me but without it I would be a couch potato so there's not much choice.

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Replies to "My rheumatologist said to taper as low as possible and still function. I now take 4mgs..."
kmeikle1 | @kmeikle1 | Jul 6, 2021

I'm afraid that sounds like an awfully low bar "still function." I prefer as low as possible with a good quality of life (not pain free though some seem to be). 4 mgs. is pretty low for two years in. I'm still at 9 mgs. after two years and drop slowly, now 1/2 mg. at a time. We can look forward to a miraculous recovery (average according to studies is 5.9 years). In the meantime, the struggle is finding the balance of the drug no one wants to use, and being able to function well. You shouldn't feel lousy most of the time. Best to you.

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