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DiscussionPMR and tapering -- will blood work change?
Polymyalgia Rheumatica (PMR) | Last Active: Jul 6, 2021 | Replies (29)Comment receiving replies
Replies to "I read prednisone can increase risks of cataracts so concerned since eye dr. already mentioned they..."
Hi zaa, A couple of days following a minor ankle injury, I had severe pain and stiffness all over my body. from the neck to the feet and hands for 9 - 10 months unlike anything I experienced, undiagnosed because I waited to go to the doctor, then lab work and x rays didn't show anything. Then gagging attacks started with sore stomach, about seven months. Read a lot about the vagus nerve and did vagus nerve reset exercises. I had an incredibly stiff neck, with pains on both sides of the head, which exercises from the physical therapist did little to correct. I noted scalp tenderness when I touched my scalp. Had a dry, non productive cough that started around 5:00 pm every night and breathlessness when speaking - I couldn't finish sentences with the breath I was taking in.. I had strange pulsating sensations on the right side of my face, extending from the ear to the nose. Eventually, these became short stabbing pains that would last a couple of seconds, but became more frequent (I counted 25 one afternoon in a two hour period). I had a couple of episodes of not being able to see out of my right eye. I could not focus and could only see white. These came on a few times, then ceased. I was extremely fatigued, especially after walking and blood work showed anemia. Then developed shingles, even after having the Shingrex vaccine. Also, I had no desire to eat and lost 12 pounds. My brother, an infectious disease doctor, reviewed my labs and told me what tests to request my doctor to order. He resisted, but did the tests. My inflammation markers were so high, I was referred to a rheumatologist. Started on 10 mg of prednisone, but it did not resolve all my pains (I told him I was 60% better). He ordered the biopsy of the temporal artery and I was positive for Giant Cell Arteritis. I was familiar with the disease as my mother-in-law had it, but stunned that I had it as my symptoms were so different from hers. She was classic text book presentation. I was started on 40 mg. prednisone, tapering down by 5 mg every two weeks. Had incredible energy, euphoria almost, and the horrible stiff neck went away. My appetite came back. So pay attention to your symptoms. I started keeping a journal, "My Book of Pain", which was useful for the first appointment with the Rheumatologist via Zoom because I could summarize my symptoms for the past year. I hope things work out for you. Aloha, tsc