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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
Amakasin worked for me. I was diagnosed with pseudomonas in early 2016. The first time they gave me a 14 day Rx of ciprpfloxin. I I started feeling better in a few days, but within 2 weeks of finishing the Rx the symptoms started coming back. Amakasin is very expensive. I had very good insurance at the time, but I still had over a $1000 co-pay. I had to inhale it via my nebulizer 2x a day, for 30 days. IT WORKED and worth every dollar. Pseudomonas is commonly diagnosed with people with bronchestisis and difficult to eradicate. Good luck. Best, Elaine
Replies to "Amakasin worked for me. I was diagnosed with pseudomonas in early 2016. The first time they..."
Oh boy, pseudomonas is a nasty bug!!! I had it last spring & I had to get a picc line inserted & was on Cefepime for 21 days!
Thanks Elaine for the info. I have got it yet, they supposed to mail it to me. I hope it will work for me too. If its very expensive I don't know how much my insurance will cover. Thanks again. Cila
Hi Jen did the treatment get rid of pseudomonas?
Hi @heathert,
Yes, the treatment was successful! After 14 days, I still was symptomatic so we decide to go for another week, ending up with a full 21 days. Apparently, IV Cefipime is a "big gun" way to kick pseudomonas's butt! I was very sick when I had it & I waited WAY to long to seek treatment because I have chronic illness with my lungs, so I just thought it was a regular infection that I'd have to just "tough it out"... BUT the difference from my usual infections was the incredible, excessive, THICK, navy GREEN, FOUL tasting/smelling MOCOUS, that increased WHEN I LAID DOWN. The mucous would actually start chocking me when I'd lay down! I felt like I was drowning (and I'm a person whose used to having a lot of excessive, thick mucous all the time!)! So by the time I went to the doctor, waited for the sputum culture report, I was very, very sick...that plus being already immune compromised is the reason, I believe, that they skippped the oral Cipro route. I'm so grateful that the treatment worked!!! I did home IV infusions via a PICC line. Easy as pie to do! ~Jen
Hi @jentaylor, it sounds really nasty but thank goodness they can get rid of it for you. Hope all is going well for you today, anxiety is a nasty bug also, we all need to kick it to the curb!!!!!!! Take care
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Nebulized Tobramycin is also great for that. Expensive also, but insurance
paid 80% and a scholarship picked up the rest.